Family Resources

This section of Info to Go provides links to resources designed for families raising a child who is deaf or hard of hearing.

Clerc Center Resources

Setting Language in Motion: Family Supports and Early Intervention for Babies Who are Deaf and Hard of Hearing (2016)

Web-based product developed as a collaborative effort between the Clerc Center and the Deaf and Hard of Hearing Program of Boston Children's Hospital for early intervention providers, educators of deaf children, early childhood specialists, allied professionals, parents, and other caregivers. Seven modules are provided to share information critical to promoting early language acquisition for young children who are deaf or hard of hearing. This product is available in both American Sign Language and spoken English, with closed captions.

Odyssey: New Directions in Deaf Education
(Annual magazine published by the Clerc Center)

Family Support Makes a Difference with a Deafblind Child: Orion's Journey (2017)

Dare to Dialogue: Engaging Parents in System Change (2016)

Reaching the Summit: Deaf Adults as Essential Partners in Education (2016)

On the Homefront: High Expectations Means Never Say "Never" (2014)

Parenting with High Expectations (2014)

Maintaining High Expectations (2014)

A Son, a World: A Mother's Discovery (2014)

The Power of Expectations: Two Stories (2014)

Raising Courtney Just Like Her Sisters: Forging High Expectations (2014)

Reading Above Grade Level-We'd Expect Nothing Less (2014, Odyssey Extra)

Standing Up For Our Children (2013)

Creating Community: Balancing the Personal and Professional (2013)

To Save a Son (2013)

Connecting Schoolwork to Life Work: Students Practice Setting Their Own Educational Goals (2013)

Reaching Out to Families of Deaf and Hard of Hearing Children in Illinois: A Collaborative Effort (2011)

Gallaudet University Resources

VL2 Parent Information Package 

An online information packet developed by the Visual Language and Visual Learning Center (VL2) at Gallaudet University provides a parent toolkit to help families and children learn ASL together, bilingual interactive storybook apps to encourage reading to children in ASL, and interviews with parents, researchers, and deaf adults on growing up bilingual, and/or learning sign language in life.

Stakeholder Resources

American Society for Deaf Children (ASDC)  

This website links to numerous family directed resources related to early language and development, including links to Endeavor magazine, the ASDC publication for families.

Beginnings: For Parents of Children Who are Deaf or Hard of Hearing

This website and associated resources were developed by a non-profit organization providing support for families with children who are deaf or hard of hearing, age birth through 21 years.

Deaf Professionals and Community Support for Families: The Best of Partnerships (NCHAM)

This chapter from the EHDI e-book discusses the role of deaf professionals and deaf community support for families of young children who are deaf or hard of hearing.

Deaf/Hard of Hearing Adult Involvement Learning Community (NCHAM)

This site is a learning community of programs involved in providing services that connect families and their deaf or hard of hearing child with deaf or hard of hearing individuals. Facilitated through the National Center for Hearing Assessment and Management (NCHAM), the website of this learning community includes links to information on research and published literature, the role of technology and social media, examples of deaf and hard of hearing mentor/adult involvement programs, family stories, and other resources and tools on this topic.

Educating Deaf Children (NTID)

Interactive website created to serve as a source of factual information for parents, teachers, and others interested in the raising and educating of deaf and hard of hearing children. It provides an opportunity to submit questions and have them answered by members of the Center for Education Research Partnerships (at the National Technical Institute for the Deaf), members of the editorial board of the Journal of Deaf Studies and Deaf Education, or one of a group of international experts who has volunteered to participate in this project.

Educational Advocacy for Students Who are Deaf or Hard of Hearing: The Hands & Voices Guidebook 

This website includes the Hands & Voices Guidebook and associated training on educational advocacy for families, advocates, and professionals who support the education of children who are deaf and hard of hearing.

Family Support and Cultural Competence (NCHAM)

This chapter from the EHDI e-book discusses issues relevant to families in the early days following identification that their child is deaf or hard of hearing.

Hands & Voices

This is the website of a parent-driven, non-profit organization dedicated to providing unbiased support to families with children who are deaf or hard of hearing. Links are provided to articles on early interventionSpanish resources, and their Guide By Your Side (GBYS), a program designed to provide emotional support and specialized knowledge from trained parents of children who are deaf or hard of hearing.

Hearing Loss and School: Parents Guide (Phonak)

A component of the Hearing Like Me website developed by Phonak, this website is directed to parents. Various topics such as advocacy, choosing an educational placement, and IEP support are addressed.

Helping You Choose: Making Informed Choices for You and Your Child (National Deaf Children's Society and University of Manchester)

This handbook was designed for families to promote an approach to knowledgeable-based decision making for children who are deaf or hard of hearing based on comprehensive, unbiased, and evidence-based information.

Infant Hearing Guide (NIDCD)

This DVD contains three sections: diagnosis, taking action, and family support. This interactive tool with videos was developed with funding by the National Institute on Deafness and Other Communication Disorders at the National Institutes of Health.

Interactive Notebook for Families with a Young Child Who is Deaf or Hard of Hearing (NCHAM)

This PDF is a downloadable resource notebook on a variety of topics related to raising a child who is deaf or hard of hearing. This resource, developed collaboratively by professionals and parents, was funded in part by grants from the Maternal and Child Health Bureau of the Health Resources and Services Administration, the U.S. Department of Health and Human Services, and the Utah Department of Health's Bureau of Children with Special Health Care Needs.

Making a Plan: IFSP Considerations for Children Who are Deaf and Hard of Hearing (CDC) 

This document was developed by the parent-to-parent committee of the Centers for Disease Control (CDC) and EHDI. It is designed to guide conversations between parents and their Individualized Family Service Plan (IFSP) teams as they address the unique language and communication considerations for a child who is deaf or hard of hearing. It is available in English and Spanish (translated by the Texas School for the Deaf).

My Baby's Hearing (Boys Town)

This online resource was developed by Boys Town National Research Hospital to answer parents' questions about such topics as infant hearing screening and follow-up testing, steps to take after identifying that a child is deaf or hard of hearing, evaluating hearing and fitting listening technologies, language and speech, and parenting issues. It is divided into two sections: "First Steps: Newborn Screening" and "Next Steps: My Baby Has a Hearing Loss." The site is also available in Spanish.

Parent Advocacy Training Course (AG Bell)

A free online course to guide parents and educators in building knowledge and confidence as they become advocates for their children in working with local school districts and service providers. Course content focuses on Part B of the Individuals with Disabilities Education Act (IDEA) and the Individualized Education Program (IEP).

Parent Toolkit 

(NBC News and Education Nation) Produced by NBC News and Education Nation, this toolkit is designed to help parents in navigating their child's journey from pre-kindergarten through high school. It is designed to help track and support progress at each stage. It provides tips for various areas of development for all children.

Resource Notebook for Families of Children Who are Deaf or Hard of Hearing (Washington State Department of Health, 2016)

Notebook for families about hearing, language and communication, advocacy, and other considerations for families who have children who are deaf or hard of hearing.

Supporting Success for Children with Hearing Loss  

This privately developed website for professionals and family members provides information about the learning and social issues of children who are deaf or hard of hearing. The website is divided into information on early intervention and school-aged students. There are links to numerous practical resources as well as webcasts for training on a variety of topics. See: http://successforkidswithhearingloss.com/catalog.  

Last revised November 2017

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