Organizations of and for People who Are Deaf and Hard of Hearing
This Info to Go directory was developed with information provided by each organization. All of the organizations are national and non-profit and provide information on people who are deaf and hard of hearing and/or specific professional or consumer areas of interest.
Each organization was asked to identify up to four descriptors that best describe the organization's focus. The codes are:
C Consumer and/or Advocacy
F Funding Source
I Information and/or Referral
AbleData provides information on assistive technology, rehabilitation equipment, and other products for people with disabilities. Project staff maintains a database containing information about assistive technology products. AbleData also produces publications on a variety of assistive products. These publications and other interactive resources are available on the website with hundreds of links to assistive technology manufacturers, distributors, and other disability-related websites. The National Institute on Disability and Rehabilitation Research of the U.S. Department of Education funds AbleData.
- ADARA: Professionals Networking for Excellence in Service Delivery with Individuals who are Deaf or Hard of Hearing (P)
ADARA promotes and participates in quality human service delivery to people who are deaf and hard of hearing through agencies and individuals. ADARA is a partnership of national organizations, local affiliates, professional sections, and individual members working together to support social services and rehabilitation delivery for people who are deaf and hard of hearing. ADARA presents an opportunity for professionals who work with Deaf people to come together and exchange ideas, suggestions and critiques regarding matters of interest to our field. The ADARA Update Newsletter is a resource for national news, articles, and information that is shaping service delivery and professional careers. JADARA is the scholarly peer reviewed journal publication for ADARA members.
The Alexander Graham Bell Association for the Deaf and Hard of Hearing (AG Bell) helps families, health care providers and education professionals understand childhood hearing loss and the importance of early diagnosis and intervention. Through advocacy, education, research, and financial aid, AG Bell helps to ensure that every child and adult with hearing loss has the opportunity to listen, talk and thrive in mainstream society. The Volta Review is the peer-reviewed journal of AG Bell; Volta Voices is their magazine.
The American Academy of Audiology, the world's largest professional organization of audiologists, is dedicated to providing quality hearing care services through professional development, education, research and increased public awareness of hearing and balance disorders. To learn more about the profession and how audiologists are helping the more than 31 million Americans who live with hearing loss, visit their website.
This academy is working for the best ear, nose, and throat care by promoting the art and science of medicine related to otolaryngology-head and neck surgery, including providing continuing medical education courses, publications, and distribution of patient leaflets and public information relating to ear, nose, and throat problems. Locate an ENT through the 'Find an ENT" database online.
AADB is a national consumer organization of, by, and for deaf-blind Americans and their supporters. "Deaf-blind" includes all types and degrees of dual vision and hearing loss. Their membership consists of deaf-blind people from diverse backgrounds, as well as family members, professionals, interpreters, and other interested supporters.
This foundation supports medical research and education into the causes, prevention, and cures related to hearing and balance. It keeps physicians and the public informed of the latest developments in hearing research and education.
ASDC is a non-profit parent-helping-parent organization promoting a positive attitude toward signing and Deaf culture. It also provides support, encouragement, and current information about deafness to families with deaf and hard of hearing children. Their publication is The Endeavor.
ASHA is a professional and scientific organization for speech-language pathologists and audiologists concerned with communication disorders. ASHA provides informational materials and a toll-free HELPLINE number for consumers to inquire about speech, language, or hearing problems. It also provides referrals to audiologists and speech-language pathologists in the United States.
The American Tinnitus Association exists to cure tinnitus through the development of resources that advance tinnitus research.
This group supports the empowerment of people who become deaf. ALDA provides resources and information and promotes advocacy and awareness of the needs of deafened adults.
This non-profit organization provides emotional support and access to information as a central resource for families with deaf or hard of hearing children, and provides an impartial approach to meeting the diverse needs of these families and the professionals who serve them. These services are also available to deaf parents who have hearing children. The mission of Beginnings is to help parents be informed, empowered and supported as they make decisions about their child. In addition, Beginnings is committed to providing technical assistance to professionals who work with these families to help the children achieve full participation in society.
The Better Hearing Institute (BHI) is a not-for-profit organization whose mission is to educate the public and medical profession on hearing loss, its treatment, and prevention. BHI maintains a toll-free "Hearing Help Line" telephone service that provides information on hearing loss, sources of assistance, and other available hearing help to callers anywhere in the Unites States and Canada.
Boys Town National Research Hospital in Nebraska is an internationally recognized leader in clinical and research programs focusing on childhood hearing, visual impairment, and related communication disorders.
The Center for Hearing and Communication (CHC) is a hearing center in New York City and Fort Lauderdale, Florida, specializing in state-of-the-art hearing testing, hearing devices, speech therapy, and emotional health and wellness services for individuals who are deaf or hard of hearing.
The CPIR is funded by the Office of Special Education Programs at the U.S. Department of Education. It acts as a central resource of information and products for parent training information centers and community parent resource centers. Much of the library of materials and publications produced by the former National Dissemination Center for Children with Disabilities (NICHCY) was moved to the CPIR website.
The Children's Tree House, serving primarily northern California, is a non-profit organization providing community-based activities for families with deaf/hard of hearing parents or children and their classrooms. They provide supplies, backpacks, and holiday presents for classes that serve students who are deaf and hard of hearing.
This organization focuses on improvements in the education of deaf and hard of hearing people through research, personnel development, advocacy, and training.
This is an organization that promotes professional development, communication, and information among educators of deaf and hard of hearing individuals and other interested people.
The DCMP is a free-loan open-captioned media program. Several hundred titles are also streamed on the DCMP website. Deaf and hard of hearing persons, teachers, parents, and others may borrow these materials. Materials include educational videos (for preschool through college) and general-interest.
The Episcopal Conference of the Deaf promotes ministry of deaf people throughout the Episcopal Church. It is affiliated with approximately 65 congregations in the United States.
Gallaudet University is the world's only four-year liberal arts university for students who are deaf or hard of hearing. Established in 1864 by an act of Congress, Gallaudet offers more than 50 undergraduate and graduate degree programs and numerous continuing education and summer courses. The university disseminates information through such units as the Gallaudet Bookstore, Gallaudet University Press, Gallaudet Research Institute and the Laurent Clerc National Deaf Education Center's Planning, Development and Dissemination office.
The GUAA represents more than 18,000 alumni of Gallaudet University who live across the United States and around the world. Currently, there are more than 7,000 life members and 52 chapters in the U.S., in Japan, and Canada. The association is governed by a board of directors who are elected by alumni life members of the GUAA. The association strives to keep the alumni informed of university and alumni news through Gallaudet Today, the university's magazine and newsletter, and by way of the Internet. The association, along with the university's office of alumni relations, is headquartered in the Peikoff Alumni House ("Ole Jim").
This organization educates the public about the real dangers of hearing loss resulting from repeated exposure to excessive noise levels. It offers information about hearing protection, hearing aids, assistive listening devices, ear monitor systems, and testing, and provides information about hearing loss and tinnitus.
The Hearing Health Foundation (HHF) is a large, private funder of hearing research, with a mission to prevent and cure hearing loss and tinnitus through research.
This association promotes awareness and information about hearing loss, communication, assistive devices, and alternative communication skills through publications, exhibits, and presentations.
This private, non-profit organization provides hearing aids for adults and children who are residents of the United States, who are deaf or hard of hearing, and who have limited income. Hear Now is a provider of last resort. All other options for service must be used before benefit can be approved. Services are distributed through a nationwide network of hearing professionals.
The HEATH Resource Center is an on-line clearinghouse on postsecondary education for individuals with disabilities. HEATH participates in national conferences, training sessions, and workshops; develops training modules; publishes resource papers, fact sheets, directories, and website information; and fosters a network of professionals in the arena of disability issues.
The Helen Keller National Center for Deaf-Blind Youths and Adults (HKNC) is the only national program that provides vocational rehabilitation services exclusively to youth and adults who are deaf-blind. The training program, located at its headquarters in Sands Point, NY, provides evaluation, short-term comprehensive vocational rehabilitation training, and assistance to consumers in obtaining employment, housing, and community supports. The center also provides professional internships. Field services include 10 regional offices, over 40 affiliated agencies and a senior adult program. HKNC maintains a national registry of individuals who are deaf-blind. HKNC is a partner in the National Consortium on Deaf-Blindness and supports the National Family Association for Deaf-Blind.
House Research Institute is dedicated to advancing hearing science through research and education to improve quality of life. Scientists explore the causes of auditory disorders on the cellular and molecular level and refine the development and application of diagnostic devices, auditory implants, and hearing aids. Children's Auditory Research and Education (CARE) Center addresses the special hearing health issues and assistive devices needs of infants and children with a full spectrum of research, diagnostic treatment, and educational services.
This association promotes ministry for Catholic deaf people. Chapters are encouraged to arrange Sunday masses for deaf people in their local areas with the liturgy presented in sign language.
This committee supports the summer and winter Deaflympics. The International Olympic Committee, IOC, sanctions the summer and winter Deaflympics. Deaf athletes are distinguished from others in their special communication needs on the sports field, as well as in the social interaction that is an equally vital part of the games.
This membership association represents hearing healthcare professionals worldwide. IHS members are engaged in the practice of testing human hearing and selecting, fitting, and dispensing hearing instruments and counseling patients.
The JDC is a national organization that serves the needs of Deaf Jews everywhere. One of their most well known events is the biennial JDC conference, which attracts hundreds of participants. The organization advocates for religious, educational, and cultural ideals and fellowship of Jewish deaf and hard of hearing people.
This educational and audiological center is located in Los Angeles for parents of infants and preschool-age children who are deaf and hard of hearing. In addition to on-site services, the clinic offers worldwide correspondence courses in English and Spanish. All programs and services are free of charge to the families. A new on-line and on-site Master's degree is now available in conjunction with the University of San Diego.
This association develops and promotes citizenship, scholarship, and leadership skills in deaf and hard of hearing students (grades 7-12) through chapter projects, national conferences, contests, and other activities. The NAD also sponsors a month-long Youth Leadership Camp program each summer in Oregon.
Karasch & Associates provides captioning and CART services nationwide to businesses as well as universities.
The Laurent Clerc National Deaf Education Center is a federally funded program on the campus of Gallaudet University that provides information, training, and technical assistance for parents and professionals to meet the needs of children who are deaf or hard of hearing. Their mission is to improve the quality of education afforded to deaf and hard of hearing students from birth to age 21 throughout the United States. The Clerc Center also maintains two demonstration schools, Kendall Demonstration Elementary School and the Model Secondary School for the Deaf.
The Media Access Group is a non-profit service of the WGBH Educational Foundation. Their mission is to make all forms of media accessible to people who are deaf, hard of hearing, blind, or visually impaired. With offices in Boston and Los Angeles, they produce captions and video descriptions of television, video, film, and on-line industries.
The mission of NAOBI is to promote excellence and empowerment of African Americans/Blacks in the profession of sign language interpreting in the context of a multi-cultural, multi-lingual environment. NAOBI is the only national organization that supports sign language interpreters from the African diaspora, and whose goal is to increase the talent pool of skilled African American/ Black Interpreters nationwide.
NADC is a non-profit organization whose mission is to define and address the cultural, political, and social issues experienced by Asians who are deaf or hard of hearing. NADC is strengthened by the diversity of its members and organizations that represent various geographic regions, languages, religions, cultures, and generations. NADC will also strive to provide education, empowerment, and leadership for its respective members and organizations.
The National Association of the Deaf (NAD), founded in 1880, safeguards the civil rights of deaf and heard of hearing Americans. As a national federation of state associations, and organizational and corporate affiliates, the advocacy work of the NAD encompasses a broad spectrum of areas including, but not limited to, accessibility, education, employment, healthcare, mental health, rehabilitation, technology, telecommunications, and transportation.
The National Association of Parents with Children in Special Education (NAPCSE) is a national association that is dedicated to ensuring that all children and adolescents with special needs receive the best education possible. NAPCSE serves the interest of parents with children in special education by giving them numerous resources within the field of special education. By having an association that they can truly call their own, parents with children in special education now have an association that is completely devoted to their needs. NAPCSE advances and strengthens its community through networking, research, publications, and membership benefits.
The mission of the National Association of School Psychologists (NASP) is to promote educationally and psychologically healthy environments for all students by implementing research-based effective programs that prevent problems, enhance independence, and promote optimal learning. This is accomplished through state-of-the-art research and training, advocacy, on-going program forum, website, and listserv where members can network, share resources, and support each other in providing school-based psychological services to students who are deaf or hard of hearing.
Organization which promotes leadership, deaf awareness, and active participation in the political, educational, and economic processes that affect the lives of black deaf citizens. Programs include YES (Youth Employment Summit) for deaf youth. Growing organization with more than 30 chapters in the United States and the Virgin Islands.
NCI, a non-profit corporation founded in 1979, is the world's largest provider of closed-captioned television services for the broadcast, cable, and home video industry.
This office assists in the coordination of the efforts of people and organizations involved in the church's ministry with deaf and hard of hearing people; serves as a resource center for information concerning spiritual needs and religious educational materials; and assists bishops and pastors with their pastoral responsibilities to people who are deaf or hard of hearing.
A national technical assistance center funded by the federal Department of Education, NCDB works to improve the quality of life for children who are deaf-blind and their families.
- National Council of Hispano Deaf and Hard of Hearing (C E I Rc)
The mission of the National Council of Hispano Deaf and Hard of Hearing (NCHD) is to ensure equal access of the Hispano deaf and hard of hearing community in the areas of social, recreational, cultural, educational, and vocational welfare. To this end, the NCHD will maintain a national awareness and advocacy program to educate the deaf and hard of hearing communities, as well as social and educational programs and organizations about the needs and issues facing deaf Hispano persons. Information can be found on their facebook page. You can also find information at their affiliate: Latino Deaf and Hard of Hearing Association of Metropolitan DC Area, Inc.
The National Cued Speech Association (NCSA) supports effective communication, language development, and literacy between individuals, families, infants, and children alike through the use of Cued Speech. NCSA supports family camps and provides instructor certification, a bookstore, a catalog, Cued Speech charts in more than 50 languages, and referrals/networking.
The NIDCD Information Clearinghouse is a national resource center for information about hearing, balance, smell, taste, voice, speech, and language. The clearinghouse serves health professionals, patients, industry, and the public.
The National Rehabilitation Information Center (NARIC) is the library of the National Institute on Disability and Rehabilitation Research (NIDRR.). They collect, catalog, and disseminate the articles, reports, curricula, guides, and other publications and products of the research projects funded by NIDRR.NIDRR funds more than 250 projects each year that conduct research on a wide range of issues including technology, health and function, independent living, and capacity building. NARIC also provides the NIDRR Program Directory.
This post-secondary educational institution in Rochester, NY, provides deaf and hard of hearing students with outstanding state-of-the-art technical and professional education programs, complemented by a strong arts and science curriculum.
NTD concentrates on artistic and theatrical professional development of deaf actors while touring in the United States with the Little Theatre of the Deaf productions in schools, theaters, museums, and libraries.
Registry of Interpreters for the Deaf (RID), a non-profit organization, is the only national association dedicated to the professional development of interpreters and transliterators. The association encourages the growth of the profession, educates the public about the vital role of interpreters and transliterators, and works to ensure equal opportunity and access for all individuals.
Sacred Circle is a non-profit organization for deaf, deaf-blind, hard of hearing, and late-deafened American Indian, Alaska Native, and First Nations individuals and their families. Non-natives who are hearing or deaf, or hearing Natives are also welcome to participate as associate members.
The SEE Center provides training and support for those who use Signing Exact English. The center provides resources, workshops, and consulting services related to communication, in general, and SEE, in particular.
A consumer advocacy membership organization, TDI provides leadership in achieving equal access to telecommunications, media, and information technologies for Americans who are deaf and hard of hearing.
As governing body for all deaf sports and recreation in the United States, this federation sponsors U.S. teams to the World Games for the Deaf and other regional, national, and international competitions.
This association provides information and support for people with inner-ear vestibular disorders and develops awareness of the issues surrounding these disorders.
This association was established to foster the development of innovation in recreational and cultural activities for the deaf and hard of hearing community.